Singapore’s First Cerebral Palsy Registry Launched.

26 September, 2017

 

On 8 September 2017, Singapore's first cerebral palsy registry was jointly launched by the Cerebral Palsy Alliance Singapore ("CPAS"), KK Women's and Children's Hospital ("KKH") and the National University Hospital.

 

Cerebral palsy is a disorder which results in loss of muscle control due to brain damage, and cannot be cured. Since doctors are not obliged to report cerebral palsy to the Health Ministry, there is no way to track those with cerebral palsy after they are no longer in special schools. As a result, there are no accurate figures of the number of people with cerebral palsy.

 

The registry will operate on an opt-in basis, and will contain data about children born after 2011 with cerebral palsy, including clinical data, contact information and other information.

 

The registry was set up with the aim to further research on cerebral palsy, and facilitate planning of resources for those with cerebral palsy.

 

For more information, you can read the full article here.